The Secret Pal left some packages for the kids for Valentine's day.
Tyler has been having some pain and movements lately and we think it may be one of his batteries is getting weak. It won't be long before he will need to get his batteries replaced. Tyler is on a middle school baseball team with some of his friends ad has been playing in games three or four nights this week alone. Yesterday Tyler was put into right field with another player and about 30 minutes into it the umpire called time out to ask why they had too many people on the field. It kind of made a spectacle out of it. Samantha sat in my lap so that I could try to hold her back up straight. She cannot get comfortable or sit still for to long. Luke ran with some kids around the park the whole time.
Samantha is going to be the honorary captain at the University of Florida's opening lacrosse game tomorrow for Tyler’s Hope. The game is the kickoff game for the 2011 season.
Luke has not shown any recent signs of symptoms and runs hard at everything. He is signed up for soccer now that basketball is over but he also wants to play baseball. I didn't have anything to do with it but he just got a mohawk haircut yesterday and thinks he is cool.
Tyler's Hope has many things coming up. On Monday there will be an announcement of a research laboratory we have funded and partnered with the University of Florida to find the cure. The laboratory will work in conjunction with the Tyler's Hope center of Excellence at UF. Here is a link to the press release: http://www.gainesville.com/article/20110218/ARTICLES/110219465/1002
On May 7th Tyler's Hope will be holding our first Ragtime Roast dinner to raise funds for curing dystonia. On May 25th we will be a part of the Grand opening of the Movement disorder center for UF where the Tyler's Hope center will be. On June 5th will be the Taste of Home event and Tyler's Hope is one of the charities to receive those funds. Lastly we should have the Title sponsor secured for the annual golf tournament this week as it is looking like this year's august event will be the biggest.
Barcelona is holding an international dystonia conference and we were invited to participate. It will be a great event to have all of the forces together from different areas and countries of the world that are all interested in finding a cure for dystonia.