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Aug
8
Written by:
Rick Staab
8/8/2010
I am getting excited about the golf tournament kick off in 11 days. We are completely sold out again and have a waiting list. This shows the support and encouragement that people give when they here about dystonia and ours plans to cure it.
Tyler has been doing his summer reading and going to movies with his friends. He swims and went to a party last night for a close friend who is moving to Orlando. His left arm pulls upwards and his jaw has been making it very difficult to eat. We started buying Boost shakes to have in between his high calorie ensure shakes.
Samantha has had some fun lately because some friends have come over to play with her and yesterday she went to a friends house and swam. They had a good time. She likes giving people funny make overs but it is very difficult for her because she cannot keep her hands steady. Her back is still twisting and pulling and her feet are still turned in. She has an awesome new haircut that looks great and I think it makes her confident.
Luke is doing great and decided to sign up for flag football. He has been wearing his Gator helmet everywhere he can. We will go pick out a mouthpiece and cleats soon. He and Tyler got a mohawk haircut a few weeks ago. They look crazy. I never thought my kids would get a mohawk so I tease them all of the time.
The girls softball world series is being played her and Tyler's Hope is the charity they chose. We have been handing out TYler's Hope fans and giving information on Dystonia to everyone that comes in.
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