Since today is April fool's day, I thought about writing something totally off the wall and outrageous but I decided against it because I want people who read this diary to remember how serious this disorder and our mission is. It seems that we are making some progress in the research for finding a cure for dystonia. Several recent papers have been published about the discovery of some drugs that may be effective in treating dystonia. Soon there will be clinical trials run and this makes it even more important to sign up for the registry if you are a dystonia patient.

At times I wonder how life could be different and the things we could do if we were not constantly fighting the battle with dystonia. That doesn't last long but it makes me look deeply into my family and the daily tasks we both take for granted and the ones we are thankful to be able to perform.

Tyler received his botox injections yesterday in his jaw and his arm. The botox injections will help him close his jaw(he has been having a difficult time doing so lately) the arm should keep it from pulling upwards(left).

Samantha has been making more of an effort to stand and move around on her own. We still carry her to and from the car, wheelchair, or bathroom but she is doing little things like getting out of bed on her own. Her hair continues to grow but has not grown enough to cover her incisions. She took the tape off of the incisions in her abdomen and told me it was so that she can wear a bikini to the beach this coming week(spring break). I think she thinks that I had them do the surgery so that she would wear one piece bathing suites but I wish I was that smart.

Luke finally made the charts(bottom end) in weight and height. He was excited and is still bullet proof to everything.