Samantha has been having some sharp pain in her abdomen where her battery pack is located on the right side. Dr. Foote is concerned that this is the first sign of an infection. They called in a presription for an antibiotic that she started taking.
Today I came home a little early from work because Michelle is very sick with the flu and Tyler just called bcause he is sick also. When I picked him up, he had just started throwhowing up. Today I get a small taste of what "the saint" (Michelle) does all of the time. I have Samantha needing me to write her homework and help her while Luke is running around getting into everything. Michelle and Tyler are throwing up so I bring them water, cold towels, and whatever they need helpe with. I try to stay connected to the business so I have the phone to my ear half of the time. Sickness doesnt help the dystonia because fatigue and stress exasperate the symptoms.
I have spoken with several families lately that found out they know someone that has been diagnosed with dystonia. They would not have know about dystonia if it was not for Tyler's Hope. The awareness of this devastating disease is just as important as other things.
We thank everyone that supports our efforts to find a cure.