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Feb 15

Written by: Rick Staab
2/15/2010 

This weekend was spent on the road with Tyler. Tyler had a baseball game (NCF Mustangs) in Leesburg. We left the house early on Saturday morning and had two games that day. Tyler was able to get into both games and play right field. We stayed the night in Leesburg and then drove over to Daytona for the Daytona 500 the next day. It was a lot of fun but very difficult for us to get around. Tyler did not bring his wheelchair. The handicapped lot was full byt the time we got the Daytona so they parked us in general parking as far a way as possible. It took us several tiresome hours to reach the track so we missed the start. It was a lot of walking for Tyler and I carried him on my back as much as posible. We ended up leaving before the race was over so we could try to make it back to the car.

Samantha and Luke stayed home with Michelle. The Secret Pal sturck again. What a wonderful person. The Pal always lifts the spirits of the kids and reminds me of the important days like Valentine's. Thanks again because whomever you are I know you read this.

I have met several new families or emailed with them about dystonia this week. I have emailed with four new families effected by generalized dystonia. One family is going to move to the Gainesville Florida area to be seen by the University of Florida staff(Shands Healthcre).

This weekend Samantha is the honorary captain of the Gator's Women's Lacrosse team and she will be flipping the coin. The team plays Jacksonville on Saturday at 6:30pm.

Luke has been playing basketball and Tyler has been helping and encpuraging him.

 

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