We had an inspiring weekend. I have spent much of the day following up on Tyler's Hope things to make the moeny work for us and find this cure.
We spent most of the weekend planning for the Season of Hope Run and competing in it. It was one of the most fun events I have participated in. The atmosphere was electric with people in great moods. We started the race with a moment of silence for a good friend (Harold Monk) that suddenly passed away at a young age. There were over 340 runners including participants that had dystonia, parkinson's disease and other movement disorders. It was a great showing of support and inspiration. Three of the runners had DBS surgery and completed the 5k. One of those people was our 10 year old Samantha. Sammy had a goal to complete the 5k but as she pushed through her physical therapy she made he new goal to beat 1 hour and 20 minutes. Sammy finished the race in 1:09. Her determination was inspiring. Her brothers were very supportive and both ran to greet while so they could cheer her across the finish line. Tyler took pictures and encourgaed everyone. Luke ran the 5k then came back to walk with his sister.
Michelle text me earlier to tell me that al of the teachers at Samantha's school are wearing their Team Samantha shirts today.
Yesterday Luke's right foot looked like it was truning in when he walked and he would skip a lot. I am concerned that he is showing something after the fatigue of the race but he said he was doing it on purpose. Keep him in your prayers please.
Thank you race director Leslie Okun.