I was driving to work this morning when I heard a discussion on the radio about taking away communication from teenagers. The lady in the conversation said the absolute worst thing you can do in the eyes of a teenager is to take away their communication. She said they spend hours on the phone and they would see the world collapsing if you took it away from them. Thought: What is it like for my 13 yr old son, Tyler, when he cannot communicate other than texting on his blackberry. These thoughts keep me up at night but also keep me very driven to find the cure.

I hate what dystonia does to people and this planet would be much better if we get rid of disorders and diseases like this.

I am excited to work with a new group on an exciting and novel approach to finding a cure. This project has come out of the Tyler's Hope Summit and should have implications on all of dystonia as well as some other diseases. It is very aggressive.

Tyler continues to impress us with his school work and knowledge. He has straight As and is taking some advanced courses. He has decided to get botoz in his jaw and see if it will help with his eating. We are also hopeful that it will allow him to close his mouth without pushing on it with his hand.

Samantha just went to her appointment and received botox in her ankles. She got a pretty hefty amount of botox. Over the next few weeks we are expecting to see the results and if it loosens her ankles up a litle more than they can give her some braces. The braces will help her to walk again.

Luke is still not showing symptoms and runs very hard. HIs soccer is over but he has turned his athletic talents to golf and basketball camp coming up.